Hannah Sames will have gene therapy in March, after an 8-year effort from her family. Go Hannah!
Eleven-year-old Hannah Sames can still curl her toes, just barely. But time is running out.
If Hannah can move her toes for a few more weeks, until she becomes the fourth child in a clinical trial for gene transfer to treat giant axonal neuropathy (GAN), the disease might halt – she may even regain function, as mice did.
It’s been an 8-year wait. So Facebook friends call 2016 “Hannah’s year.”
The first sign that something was amiss Read More
If Hannah can move her toes for a few more weeks, until she becomes the fourth child in a clinical trial for gene transfer to treat giant axonal neuropathy (GAN), the disease might halt – she may even regain function, as mice did.
It’s been an 8-year wait. So Facebook friends call 2016 “Hannah’s year.”
The first sign that something was amiss Read More